Monday, May 13, 2013
Share and Don’t Share
Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see?
Dear Dr D,
You have been taking care of Bee for years now. Not quite at the very beginning of her diagnosis 8 years ago, but not too long after. And because we have known you for so long, I feel like I can always talk to you.
I do tell you everything. There is no reason not to. I told you when Bee sent me fake numbers every day for 2 weeks because she just didn't want to check her blood sugar. I told you that I am scared to correct at night for fear of another seizure. I cried in your office, more than once, out of sheer frustration and exhaustion, while I rambled on and on about what I could be doing wrong.
When you download the pump, you see the missed boluses, the uncorrected high-ish night time blood sugars, the crazy check/correct, check/correct, check/correct one after another when I am obsessing about getting it just right.
There isn't a lot I don't tell you. Not only because I know you'll see it anyway, but because I feel comfortable enough telling you when I screw up. And not once have you ever judged. You have only listened, helped and hugged me when I needed it. And you have done the same for Bee. Out of all of her specialists, you are the only one she really talks to.
I know this isn't what this blog post is supposed to be about, but I just wanted to say thank you. Dealing with T1D on a daily basis is very difficult. But I know that no matter what, you will always have our backs.